M.E and Winter Illnesses

M.E and Winter Illnesses

If the covid pandemic taught us anything, it’s how dangerous germs can be; how easily they can be passed on and left on surfaces and how quickly they can spread.  I hoped that this would be a fact that stayed with people after the pandemic and that, people would think more carefully about how they interact with the world when fighting a virus.  Unfortunately I think it’s something that the majority of society has pushed to the back of their mind, ‘now the pandemic is over and done with, what’s the big deal?’  Unfortunately though, covid isn’t the only virus out there that can make people really unwell and there are still people out there with compromised immune systems and those struggling with a chronic illness like I am. 

Every year, that inevitable time of year comes when everyone seems to fall ill with a cold or similar winter virus and I dread it.  I love autumn and winter but winter illnesses can make these seasons risky for me.  My M.E was triggered by a virus 8 years ago, which highlights the fact that although viral illnesses may be short term; they can have real long term consequences on the body.  I used to be a fairly healthy person, I’d catch the common cold and get over it quickly and life would go on regardless.  I miss my body’s ability to fight off viruses so effortlessly and quickly.  Now, a simple cold can be a real detriment to my health, it can cause a full relapse of my chronic illness, it can undo all the work I’ve done to manage my M.E.  It doesn’t matter how much progress I’ve made with my illness because a simple virus can eradicate it all and leave me back at square one, possibly bedbound and unable to live my life properly.

One of the things during the pandemic which I didn’t find novel was the question “any fevers, coughs or runny noses?” when trying to book an appointment somewhere. I’ve asked family and friends a similar question every winter since I became ill with M.E because when living with a chronic illness that makes fighting off viruses and other illness difficult; it’s all about minimising the risk of contracting anything.  I’m sure some family and friends have thought me paranoid or dramatic but I have to do what I can to avoid winter viruses.  I know it’s pretty inevitable that I’ll catch something over winter and more than once, that’s life.  But, I get really frustrated when someone who is evidently unwell takes no precautions to protect other people who may be less overall healthy than they are.  I’m not sure when people became so selfish, where did a thought for others stop entering people’s minds?  Covid should have taught us how easily it is to spread a virus, how badly it can impact some people.  It’s a lesson that I hoped would stay with more people, that would encourage people to think about others, to be more aware of germs and the ways illnesses are spread. 

My blog post today is motivated by an experience at my local supermarket last week, an experience which really annoyed me and made me want to just hibernate away all winter.  Within minutes of walking into the shop I witnessed a woman blowing her nose and coughing.  A fairly normal sight for the colder months but this woman was making no effort to cough into her hands, or sneeze into a tissue.  Instead she was picking up food, coughing all over it then placing it back on the shelf.  She did it dozens of times and she didn’t even seem aware of the fact she was spreading hundreds or thousands of germs over these food items then just putting them back for others to potentially touch. It’s that ignorance that frustrates me because there was clearly no awareness of what she was doing and therefore no attempt to minimise the risk to others. The worrying thing was, I saw a few people coughing and sneezing without an attempt to cover their mouth or nose, there were a few customers who seemed to have a cold or similar illness but not be worried about spreading it on to others instore.  I completely understand that the majority of people have to get on with life when they have a cold or virus, if you’ve got to go out to a public place then you’re entitled to do that.  I just don’t understand why it’s so difficult to carry a mask if you know you are unwell and it may be contagious, we know how important mask wearing was in preventing the spread of covid.  It’s a simple thing to just put a mask on and protect others, it’s a simple way to limit the amount of germs you are spreading when ill.  Even coughing into your hands or sneezing into a tissue is preferred over freely coughing and sneezing into the air; that’s something I was taught when I was a child.  My Mum manages a shop and it’s shocking how many customers come in and when asked how they are, reply; “Oh I’ve got this horrible virus, I’ve been really ill” or variants of it.  It’s scary to me, how many people have no issue going out and potentially passing on their viral illness to someone vulnerable.  I’m not saying that someone with a virus should lock themselves away, I’m saying that the pandemic taught us so many ways of limiting the spread of germs and everyone seems to have completely forgotten them.  Social distancing, mask wearing, carrying sanitizer, coughing and sneezing into a tissue and disposing of it afterwards.  All these things are simple but people just aren’t doing them.

I don’t think healthy people understand how scary a simple virus is to someone with a chronic illness or poor immune system.  Chronic illnesses like M.E are about daily management, struggling with chronic symptoms that affect every aspect of life.  I have to fight so hard to be a relatively normal, functional being and manage all my symptoms and limit the chance of flaring them up.  So adding a virus to that struggle makes management almost impossible and I’m often left bedbound for weeks, relying on other people to care for me.  I’m never sure how badly a virus will effect me afterwards; will I return to my previous level of functionality? or will I backslide and be unable to do things I’d previously started to manage.  Will it cause my M.E to completely relapse and revert to when I was at my worst, how long will this last? A simple winter virus that most people will recover from in a week, or not even know they have; has a huge impact on my life and health.  I just wish more people understood that, I wish more people considered this when going out with a viral illness that could be passed on to someone more vulnerable. 

It’s one of the reasons that people with severe chronic illness feel so isolated; because to keep our health stable, we have to isolate ourselves.  If people can’t take simple measures to restrict how they spread germs and viral illnesses then what choice do we have; but to avoid social contact. 

I guess my advice for chronic illness sufferers this winter is; it’s okay to be selfish if you’re doing it to protect yourself.  By this, I mean, don’t be afraid to ask people you’re meeting with if they have any cold or viral symptoms, don’t be afraid to cancel social appointments if you believe someone there may have a virus.  Don’t be afraid to tell you’re loved ones how detrimental a simple illness like the common cold can be to you.  People may be judgemental and say you’re a hypochondriac, but the people who genuinely care about you will understand and want to keep you healthy this winter.  More importantly, if you’ve got to go out into public places then do what you can to protect yourself; carry sanitizer, carry a mask, distance yourself from people you see coughing or sneezing, wash your hands frequently and try to limit how many public surfaces you touch. Be safe and do what you can to prevent the spread of winter illnesses, because a lot of people are ignorant of the impact these simple illnesses can have on someone with a low immune system or a chronic illness.

(Just a note to say, excuse any spelling or grammatical errors in this post. I am actually currently suffering with a cold and the fatigue and brain fog are currently awful.)

Winter Warmers and M.E

Winter Warmers and M.E

With the temperatures dropping so quickly and it finally feeling like winter has come, I thought I’d write about the tools I use to keep warm during these cold months.  Anyone with M.E or Fibromyalgia will know that the cold can be a major trigger for pain and discomfort.  M.E and Fibro often effect the bodies temperature regulation system so it’s hard for us to cool down in the summer and hard to warm up in the winter.  My M.E comes with a lot of joint and muscle pain which worsens during the winter months, my body struggles to warm my limbs up and it often results in ice cold skin and stiff joints.  It’s hard to explain the feeling of cold bones and I’ve only struggled with it since developing M.E; it’s like the cold has penetrated my skin and frozen my bones solid so any movement hurts.  It’s easy for people to say ‘put a jumper on’ or ‘wear more layers’ but when the cold has penetrated so deep into the body, even those extra layers don’t seem to help.  So, I thought I’d list the things I do and the items I use to warm myself up during winter.

  • Shaped hot water bottles.  Gone are the days of the typical hot water bottle, you can now get them in all kinds of different shapes.  My favourite are the long hot water bottles because they stretch the whole length of my legs, making them perfect for warming up my limbs when my circulation is bad.  My legs are the hardest part of my body to warm up but sitting under a blanket with one of the long hot water bottles provides some immediate warmth.  The long bottles are very versatile because if you don’t fill them too full, they are flexible and can wrap around your shoulders or wrap around the lower back to provide some lumbar comfort.  There are also other shapes and variations that are useful; ones shaped to fit around your neck and shoulder area, tiny ones for your hands and feet, ones with a teddy cover so their super soft on the skin etc.  An alternative that is also useful are the microwave wheat bags, which also come in various shapes and sizes.
  • Fleece lined clothing.  I always buy fleece lined clothing for the winter because it protects you better when you need to be out in the cold and it’s soft on the skin, which is useful if you also suffer with allodynia (painful and sensitive skin).  My favourite purchase this winter has been some fleece lined leggings, they’ve been a huge help in protecting my legs from the cold.  It’s an extra barrier for the cold to get through so it prevents my legs becoming too cold when out and about and they are just a small piece of comfort for my aching bones and muscles.   A fleece lined hoodie or jumper is a good choice for indoors when it’s chilly and you want to prevent putting the heating on until you must.  Also, fleece lined socks and slippers are my essential for winter because my feet are always like ice, and I find that if my feet are warm then my body warms up faster too.
  • Hot drink maker.  I’m a coffee addict so I adore my Dolce Gusto coffee machine and it gets used a lot during the winter.  Coffee machines vary in sizes and prices, there are the more expensive luxury brands and the cheaper, smaller machines.  You can get a Dolce Gusto machine for under £100 and even under £50 at times.  They are well worth the money.  I have the Genio S Plus machine and the thing I love most about it is, it’s quick and doesn’t take any of my energy up.  Kettles are often heavy and M.E can give you muscle weakness and joint problems so lifting a kettle isn’t always easy.  The water tank on my machine can be pulled out but it also has a removable lid so you can fill it with a jug which is easier if I’m unable to lift anything heavy.  It’s a useful gadget for winter because hot drinks are a good option to warm up, especially after being outdoors.  My machine also has a temperature choice so it pours the hot drink at a temperature where I can drink it immediately, it’s useful when I just want to grab a hot drink and get in bed. 
  • Electric Blanket.  The best gift I’ve ever been given!  If you’re struggling to think of a gift for someone with a chronic illness, then an electric blanket is a great choice.  I have one that goes over the mattress and under the bottom sheet.  You can get ones that are more like throws and go over your body, but I find the under-sheet ones warm the bed for longer.  When my skin is like ice and my joints and limbs are sore from the cold, my electric blanket is the best thing to warm me up and get some feeling back into my body.  My electric blanket can be set to warm for 9 hours or just an hour so it’s easy to operate and I usually only need it on for an hour, then my bed is warm for the night.  It’s a really useful item for the winter and it has helped my aches and pain so much at night.
  • Arnica Gel.  Maybe a strange one but I use arnica gel a lot during the winter because my muscles and bones hurt so much.  Arnica Gel is a herbal product that has pain relieving qualities and I bought it a few years ago to try, I didn’t hold out much hope, but it has been excellent in relieving my muscle pain.  It also has a warming effect when it’s applied which is nice during the cold months.  If you have any allergies or skin sensitivities, then I’d recommend speaking to your GP or pharmacist first.  But if you haven’t tried it and are looking for a medication alternative for your pain then I recommend this.  I found that I didn’t need to take my pain medication as often when I used this gel, and it works really well for my regular aches and muscle pain.
  • Heated slippers.  I’ve often used heated slippers when my feet aren’t warming up easily.  You can get some that go in the microwave or boot ones that plug in to an electrical socket.  It’s a useful item to quickly warm your feet up and perfect for lounging about and keeping toasty.  Like I’ve said above, when my feet are warm it makes my body easier to warm up. 
  • Teddy bed sheets.  I love teddy bed sheets in the winter because they are just perfect for retaining heat and making the body feel cosy and warm.  They are super soft on the skin and there’s none of that ‘cold sheet’ feeling when you first get into bed.  M.E often means spending a lot of time in bed, so I think it’s important to make the bed a nice and comfortable place to be.  Teddy sheets are a simple way to make your bed feel a bit more luxurious and cosier.  You can kit your whole bed out with teddy sheets or just buy pillowcases or an under sheet, it depends on your preference but they are a great item for winter.

So, there’s my list of winter warmers, a lot of these would make great gifts for someone with chronic illness.  It’s nice to receive a present that shows someone has considered your illness and purchased something to assist in the management of it.  People always ask me if I’m tired of receiving pyjamas at Christmas, but I never am because pyjamas are what I spend much of my time in when I’m housebound.  I hope this list is useful and I hope everyone with M.E or any other chronic illness stays warm this winter.  I want to add that it’s a hard time right now for people, with the cost of electricity and raised cost of living.  A lot of people with chronic illness use electrical items to relieve pain and manage their illness so it’s difficult when energy costs are shooting up.  I don’t receive any warm home discounts or payments from the government because I live with my parents, therefore I don’t pay the bills, which means I don’t qualify.  It’s maddening because the cold can negatively affect my M.E so I can’t avoid putting the heating on or using my electrical warming items.  In my opinion, the government has let thousands of people with chronic illness and disability slip through the net this year and it’s made living and affording essential items difficult. It’s frustrating and disappointing.  There needs to be more recognition and aid for those suffering with chronic illness and disability, as well as more help for carers.